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NYU Center for Disability Studies | Autistic Self-Advocacy, Neurodiversity, and Disability Culture - Shared screen with speaker view
Julie
43:39
Hi from London UK
Sophie Leiton Toomey
43:52
Hello from Beverly Massachusetts!
Joyce Melo
45:15
Hi from Volta Redonda, Brazil.
Maria Hodermarska
47:06
Greetings from Maria (she/her) and Ethan (they/them) from Brooklyn, NY
Clea Mahoney
47:35
Hi from Colorado! This is the most “accessible” Zoom I’ve ever been in, big thank you to the organizers. I’m Clea (she/her) and work as staff in NYU IT, and adjunct for SPS.
Helena Fietz
48:12
Hi Faye! Hi everyone! Greetings from Brasil!
Mara Mills
48:19
Thank you Clea — we are always working on improving accessibility.
Clea Mahoney
49:10
I will be looking to learn (I run faculty training webinars). Thanks! Excited for this topic, too.
Emily Lim Rogers (she/her)
53:40
I think older versions of Zoom don’t have the ability to click and drag captions (or at least mine doesn’t). Folks should try to adjust the size of the Zoom window (i.e. make it narrower) and see if that works. You can also adjust the size of the CC under CC settings.
Julie
54:26
Is this streamed also on Youtube? Or available later online?
Ally Peabody Smith
54:43
I believe they said they’d post the recording later this week! And hello from LA :)
Emily Lim Rogers (she/her)
54:45
It will be posted on our website afterwards
Julie
54:50
Thanks
Clea Mahoney
55:15
Thank you for those tips, Emily! I had no idea that was possible in Zoom.
Mara Mills
01:00:23
Thanks Jules— agreed. (& we moderators all need to add our pronouns to our names as Emily has done…)
Emily Lim Rogers (she/her)
01:01:40
“Allow participants to rename themselves” is turned on—so feel free to do that!
Emily Lim Rogers (she/her)
01:02:25
(Cursor over your name in the participants panel, click “More” and then click “Rename”)
Julie
01:02:46
I don’t think we can access the participants panel
Clea Mahoney
01:02:50
Ah, we cannot see the participants tab - I think that’s a function of Zoom webinars vs. meetings
Melissa McIntyre
01:03:15
Lydia your Are AMAZING. Call all that in.
Clea Mahoney
01:03:23
💯
Julie
01:03:36
👏
Sophie Leiton Toomey
01:03:47
GO OFF LYDIA
Zachary Borodkin
01:03:53
It's tokenism for profit
Julie
01:04:01
Whewwwww
Zachary Borodkin
01:04:03
Capital Tokenism
Harini Kannan
01:04:06
YES!! This is amazing.
Melissa McIntyre
01:04:38
EXACTLY.
Grace Gerberding
01:04:46
Yes i agree with you!
Melissa McIntyre
01:04:48
I don’t want a seat at their table!
Sophie Leiton Toomey
01:04:49
YES EXACTLY
Callie Short
01:04:53
AMAZING!
Melissa McIntyre
01:04:57
I want to flip the table over.
Keiko Uenishi
01:05:08
Really well said!
Sophie Leiton Toomey
01:05:21
Lydia is my new hero. <3
Dora Magallanes
01:05:22
YAS.
Melissa McIntyre
01:05:26
Snap snap snap ***
Julie
01:05:28
WOW indeed
Judi Rubin-Bosco
01:05:31
Thank you Lydia!!
Kate Powers
01:05:33
mic drop
Zachary Borodkin
01:05:38
Mic drop!!!!!!!!
Graciela Slesaransky-Poe
01:05:39
WOW Lydia!!!!
Ally Peabody Smith
01:05:42
YES
Lydia X. Z. Brown (they/them)
01:05:48
(Don’t worry; I read the chat. ^_^ )
Rita Park
01:05:53
Amazing!
Ally Peabody Smith
01:05:54
<3
Sophie Leiton Toomey
01:05:55
Oh bless you. <3
Helen Joyce-Carodonna
01:05:55
Poetry. Thank you.
Jessica
01:06:04
You’re amazing!
Erin Sanders-Simgon
01:06:14
You rock, Lydia!
Allison
01:06:16
Goosebumps. So important to hear as an autistic person of color.
Sophie Leiton Toomey
01:06:20
Exactly. Disability never enters the conversation.
Veronica Bundy
01:06:20
YES LYDIA! Thank you!!
Graciela Slesaransky-Poe
01:06:25
❤️🙌🏼🙏🏼 Lydia!
Keiko Uenishi
01:06:32
I used to say ‘it’s like Benetton advertisement campaign’. I never want to be included in there!
Ally Peabody Smith
01:07:16
Agreed - and I think intersectional theorists would agree very strongly. There’s no “oppression olympics” or end to groups that matter to intersectional thought.
Julie
01:07:35
mmm
Estee Klar
01:07:40
yes!!
Julie
01:07:48
Damnnn
Keiko Uenishi
01:08:16
Thank you!
Zachary Borodkin
01:08:16
Thanks for flipping political correctness on its head!
Pooja Rangan
01:09:55
🔥🔥🔥
Maria Hodermarska
01:15:28
Dear Lydia, My name is Ethan (they/them) I am autistic and gender queer. I really appreciate all the things that you have said about organizations and how they del with marginalization. Everything you said was totally relevant to my experience. I feel angry all the time about lack of understanding and access.
Landon Krentz
01:16:58
Interpreter is catching up so fast to Michael’s point but a lot of the context were lost. :\
Estee Klar
01:18:34
which is why we turn to autistic work... particularly work that views expression not has behavior, but as creativity and invention
Ally Peabody Smith
01:18:40
Eva Federer Kittay has a lovely chapter on the desirability (or not!) of normalcy in her book, “Learning from my daughter”
Julie
01:18:44
Mhmmm
Emily Lim Rogers (she/her)
01:18:58
I have removed Xenia
Beatrice Bolton
01:19:09
I’m blind/low vision and can confirm, this happens constantly.
Beatrice Bolton
01:19:38
Great points Lydia!
Caren Watkins
01:19:43
and our world is designed (systems, etc.) with and for sighted.
Amanda Apgar
01:19:54
Not only to “preserve” sight or prevent blindness but also to communicate “seeing” according to sighted people’s experiences.
Anna Olson
01:20:09
There is no hierarchy of oppressions!
Amanda Apgar
01:20:11
Lydia always brings it
Estee Klar
01:20:31
exacccctly…
Julie
01:21:06
Yupp
Erin Sanders-Simgon
01:21:07
Xenia? @Emily
Melissa McIntyre
01:21:14
THANK YOU LYDIA.
Estee Klar
01:21:42
First time I've had the pleasure of hearing you speak, Lydia... such a pleasure. Adam and I are listening.
Erin Sanders-Simgon
01:21:55
YESS!! On the cochlear implants. You nailed it!
Emily Lim Rogers (she/her)
01:22:22
My understanding was that Lydia requested to remove the attendee Xenia Grant from the chat, although it appears the comments were addressed just to the panelists and not the attendees
Landon Krentz
01:22:27
Agreed with the statement about cochlear implants.
Jacqueline Jastram
01:22:49
WOW
Harini Kannan
01:23:34
Yes @ sanism
Keiko Uenishi
01:24:12
I’d like Lydia’s talk to be heard by all, esp those who are in education
Adi Magid
01:25:18
Lydia, everything you state is so eloquently put and spot on! Listening to you is truly empowering
Lydia X. Z. Brown (they/them)
01:25:32
Estee - I’m happy to finally be in the same space as you after all these years! :) I would love to connect offline.
Estee Klar
01:25:43
Yes!!!
Julie
01:28:02
Can you link to this fund? Is it this? https://awnnetwork.org/donate-to-awn/
Jason Ross
01:28:36
Lydia, this is a really great project.
Allison
01:28:39
Here it is: https://autismandrace.com/autistic-people-of-color-fund/
Julie
01:28:48
Thanks!
Julie
01:29:46
Love it, just donated!
Jason Ross
01:30:07
thank you Lydia and Michael for this panel talking. Jae (they them theirs)
Clea Mahoney
01:31:10
excellent point re. AI. I’m on a mission to get rid of virtual proctoring…similar issues!
Estee Klar
01:32:02
that's fabulous... will it be on website soon?
Clea Mahoney
01:32:16
All of your work sounds amazing, Lydia. Thank you for sharing!
Jason Ross
01:32:22
this is an important thing.
Estee Klar
01:32:49
WANT!
Nicole McCaffrey
01:33:14
Before You Go: https://awnnetwork.org/wp-content/uploads/2020/10/Final-Version-Before-You-Go-Know-Your-Rights-Booklet.pdf
Julie
01:33:17
mmmmm
Jason Ross
01:33:18
I can’t wait to get that
Julie
01:34:15
Would love to hear more about this work on collective trauma and support
Julie
01:36:34
THEY!
Lydia X. Z. Brown (they/them)
01:36:44
My pronouns are they, not she.
Anna Olson
01:36:48
their pronouns are next to their name
Melissa McIntyre
01:37:08
Michael you are mis gendering Lydia
Michael John Carley
01:38:51
Apologies, Melissa! (and Lydia)
Clea Mahoney
01:39:27
💜
Clea Mahoney
01:40:23
YES. We need to eliminate the phrase “new normal”
Julie
01:41:14
Whewww
Erin Sanders-Simgon
01:41:58
YES! All of this. All of that!
Estee Klar
01:42:22
That word "rush" is so important. It gestures to alternative possibilities and conditions that support neurodiversity rather than these unliveable neurotypial/neoliberal conditions that are killing us.
Jason Ross
01:42:22
I can understand the misgebdering Lydia as I get this quite often too. trauma is an important part of the mad, autistic, neurodivergent, neuroqueer, and many ways of trauma in the human race. the human race rushes which is like a part of the human experience as well as how much so many things are not a constant. it’s fluid in many ways. Jae (they them theirs)
Beatrice Bolton
01:43:52
Thank you Lydia, and Lydia only. Fantastic points. Michael John has added nothing to this very interesting conversation tonight.
Faye Ginsburg
01:44:18
Wonder if panelists could comment on the fact that in 2016 and 2020, for the first time, a “disability vote” was organized with groups such as #cripthevote and others and candidates are at least starting to recognize disabiled folks as people to account for - thoughts about that?
Landon Krentz
01:45:51
I agree with Baetrice. The interpreters are working hard to make clear concise points but I got nothing. Super annoying for Deaf people who uses ASL to tolerate.
Sophie Leiton Toomey
01:47:16
Having the Trump folks continue the anti vax movement theories during the 2016 campaign were very hurtful.
Landon Krentz
01:47:35
Just to clarify, this is about Michael’s comments.
Landon Krentz
01:48:03
Interpreters are fine.
Landon Krentz
01:48:44
No I know, it’s impossible, I needed to use the captioning to understand the context that was missing.
Beatrice Bolton
01:49:05
Why are you romanticizing this? This is an innarpproiate and ignorant way to raise this question
Beatrice Bolton
01:49:19
^Michael John
Sophie Leiton Toomey
01:50:00
Let her finish please.
Landon Krentz
01:50:04
Kiss-fist you Jess.
Sophie Leiton Toomey
01:50:06
Them.
Landon Krentz
01:51:22
No problem, you both have rockets on your hands.
Rita Park
01:52:13
Hahahaha yes!
Nicole McCaffrey
01:52:35
Yes! @socialworkerscankissmyass on Instagram had some great comments today on the co-opting of "trauma-informed"
Nicole McCaffrey
01:52:50
(to add to what Lydia is sharing)
Rita Park
01:52:50
Yes re trauma
Sophie Leiton Toomey
01:52:58
YES
Patricia Gentile
01:52:58
true about "trauma informed care" being the new buzz word in health care
Julie
01:53:10
Damnnn yes
Faye Ginsburg
01:54:01
I am facilitating commiunication for my client who is non-verbal autistic, he would like to know: “how can we ( people with autism) be heard in our sameness (and begin) freeing ourselves (humans) from closed thughts” .
Mary Koshy
01:54:38
Lydia - thank you speaking the true and driving the change
Julie
01:54:43
^^
Beatrice Bolton
01:54:52
^^^
Lydia X. Z. Brown (they/them)
01:55:29
@Zachary - DRNY could begin with supporting its own disabled employees, and respecting their access needs.
michelle flemen-tung
01:55:48
YES yes yes there is no way to compare experiences of trauma
Darnell Newsum
01:55:51
Thank you all - sorry that I must leave session. Faye Ginsburg - thank you and hope to connect soon.
Lydia X. Z. Brown (they/them)
01:56:03
@Kathleen, I spoke earlier to the abusive and violent nature of ABA, and its roots with gay conversion therapy.
Kathleen Stone
01:57:19
@ Lydia, Thank you! I look forward to viewing the recording
Sophie Leiton Toomey
01:57:22
Lydia, a question for you. My classmates and I are trying to fight for those with disabilities in our department because we are barely recognized or given opportunities. My question is how do we approach those in power, in positions of the oppression as you’ve so brilliantly described, and hold them accountable to having us be included?
Gala Korniyenko
02:00:57
question for Lydia: what would be the strategy for self-advocating in academia if person does not want to disclose the disability because of fear of being stigmatized or discriminated
Lydia X. Z. Brown (they/them)
02:02:18
My homepage is www.autistichoya.net and new homepage (under construction) is www.lydiaxzbrown.com. Most of my writing is linked from one of those pages. I have work forthcoming in several new anthologies - community and scholarly.
Anna Olson
02:03:50
I admire Lydia's speaking style and thought processes. I wonder if anyone here has any tips for public speaking/direct communication?
Sophie Leiton Toomey
02:04:41
NO IT SHOULD NOT!
Sophie Leiton Toomey
02:05:10
Thank you!
Lydia X. Z. Brown (they/them)
02:06:14
@Julie, you can join on your own: https://www.facebook.com/groups/autisticpoc
Julie
02:06:42
Thanks!
Lydia X. Z. Brown (they/them)
02:06:56
Someone asked about hobbies - I write fiction and poetry, sing in a few dozen different languages, and bake and cook everything from scratch (mostly Ethiopian, Indian/Pakistani, Thai, Ashkenazi, and Italian food)
Anna Olson
02:07:30
I asked this, thank you!:)
Keiko Uenishi
02:07:56
I’d love to read your fictions, Lydia!
Lydia X. Z. Brown (they/them)
02:07:57
Yes and no @Rachel. I’ve written and spoken extensively on both the power of the social model, as well as its limitations and failures.
Erin Sanders-Simgon
02:08:04
I asked about deaf/deafblind.. :-)
Mara Mills (she/her)
02:09:00
Fortunately all of these questions are recorded — I’m sorry we didn’t get to have a conversation about all of them. (Glad Lydia squeezed their hobbies in though — I didn’t know about the singing!)
Julie
02:10:03
Mmmm thanks for that
Lydia X. Z. Brown (they/them)
02:10:33
Serge Kovaleski
Graciela Slesaransky-Poe
02:10:35
Yes!!!!
Erin Sanders-Simgon
02:11:49
FACTS!!
Minji Kim
02:12:22
I love the way that Lydia says it like it is! So beautifully and powerfully said!
Erin Sanders-Simgon
02:12:26
HEARD DC
Erin Sanders-Simgon
02:12:39
HEARD NY
Erin Sanders-Simgon
02:13:00
YESS!!
Mara Mills (she/her)
02:13:14
www.sinsinvalid.org
Emily Lim Rogers (she/her)
02:13:41
Sorry all—since we are over time, the captioner had to log off.
Erin Sanders-Simgon
02:14:12
behearddc.org
Clea Mahoney
02:14:13
Thank you for this fantastic event. Bookmarked Lydia’s site!
Patricia Gentile
02:14:17
Thank you for this webinar....
Julie
02:14:28
Thanks very much
Erin Sanders-Simgon
02:14:29
Thank you all!! So appreciative of this powerfulness
Christina Beck
02:14:32
Thank you!!!
Veronica Bundy
02:14:34
Thank you!
Kaia Dalamo
02:14:35
Thank you very much.
Estee Klar
02:14:35
THANK YOU ALL!
Rita Park
02:14:36
Thank you ALL!!!
Anna Olson
02:14:37
thank you!
Pooja Rangan
02:14:38
So many thanks!
Erin Sanders-Simgon
02:14:42
Lydia.. as always.. humbled and honored to be in your presence!
Kathleen Stone
02:14:42
Thank you!
Laurie Duke
02:14:43
Thank you very much
Caren Watkins
02:14:45
thank you all so very much.
Graciela Slesaransky-Poe
02:14:45
Thank you!!!!
Judi Rubin-Bosco
02:14:48
Thank You All!
michelle flemen-tung
02:14:50
Thank you !!!!
Ming Yuan Low
02:14:51
Thank you so much!
mel hudson
02:14:58
Thank you!!
Callie Short
02:15:05
Great conversation, thanks so much!
Melissa McIntyre
02:15:11
Thank you so much everyone
Christina Beck
02:15:30
Please connect with me or the Disability Student Union if you want some student to student support or to hear what we are doing to combat ableism on campus. cmb890@nyu.edu
Helen Joyce-Carodonna
02:15:32
Thank you.
Keiko Uenishi
02:15:36
It felt so short! Thank you!!
Virginia Skar
02:15:46
Many thanks to all!!
Jacqueline Jastram
02:16:04
Thank you
Radhika Hira
02:16:13
Thank you so much! 🙏🏼
Christina Beck
02:16:13
Thank you SO much for having this event!